Meghan King Edmonds has revealed her one-year-old son Hart has “irreversible brain damage.”
The “Real Housewives Of Orange County” star confirmed the devastating news on her blog on Thursday night.
In the lengthy post, the mother of three detailed how she fought against several medical professionals and their insistence he was fine, when her mothering instinct knew something was not.
“From the minute he was born I knew something was different with Hart,” she began. “The nurses struggled to straighten his legs to measure his length. He suckled hard, shallow, and often until I bled and he spit up black.”
As his issues persisted, Meghan said she pleaded with pediatricians and neurologists to investigate further, to no avail, until she decided to take matters into her own hand — one week after she discovered her husband’s alleged affair.
“Eight days after the bottom fell out of my life I put my son through an elective MRI with anesthesia,” she wrote.
“I sat at a table with my husband for an hour as we waited for Hart to come out of the MRI. Tears gushed from my eyes as I blankly stared at the cars on the highway – but I wasn’t crying. My husband asked me what he could do. ‘Get me a Coke.’ Those tears were for a lot of things, but mostly the unknown and mostly Hart.”
Three days later, she got the call. “Hart has irreversible brain damage, it’s called PVL,” she said.
Meghan explained that Hart – whose twin brother Hayes is completely unaffected – has minor Periventricular Leukomalacia on both sides of his brain, which explained all of her concerns: the rigidity in his muscles, the (somewhat) delayed physical milestones, the lack of fluidity with arm and leg movements, the stiffness in joints, the weakness in his lower back, the somewhat favored use of his right side.
While she already knew in her heart, she said Hart’s dad was surprised by the diagnosis.
“I explained to Jimmy how we are not somehow compromised or punished for having a child with special needs (whatever that may or may not mean!), we are BLESSED,” she wrote. “I will go on about this another time but just know that I do not see his diagnosis as anything but a gift: we were chosen to take on this special person. I truly feel as if we’ve doubled down and won the underdog hand. Truly.”
“This doesn’t mean his diagnosis isn’t a challenge… or a little bit sad, or that I don’t feel a little bit guilty. Because yes – just yes – to all of those things.”
She concluded: “I pray for a miracle and I grapple with how to navigate his life. Thirteen days after his diagnosis I finally put these thoughts to paper. This is a heavy challenge as a mother: where do we go from here? This is where: one foot in front of the other.”
Just last month, in yet another brutally honest blog post, Meghan opened up about her discovery Jim had been texting explicit pictures to another woman while she was giving birth to the twins.